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American Behavioral Scientist
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Family Issues in End-of-life Decision Making and End-of-life Care

WILLIAM E. HALEY

University of South Florida

REBECCA S. ALLEN

University of Alabama

SANDRA REYNOLDS

University of South Florida

HONGBIN CHEN

University of South Florida

ALLISON BURTON

University of South Florida

DOLORES GALLAGHER-THOMPSON

Stanford University School of Medicine and Veterans Administration Palo Alto Health Care System

Family members are involved in every aspect of end-of-life decision making and care. The present article reviews family involvement in providing care during chronic and terminal illness, in discussions and plans for advance directives, in decision making during chronic illness, in executing advance directives and making critical decisions near the end of life, and the long-lasting effects of caregiving and difficult decisions on the family member during bereavement. Although legal standards and much of the research on end of life emphasize individual decision making and the value of autonomy, end-of-life care and decisions should be increasingly understood within a family context. There is also increasing need to study how issues of race, ethnicity, and culture affect end-of-life care and decisions within families.

American Behavioral Scientist, Vol. 46, No. 2, 284-298 (2002)
DOI: 10.1177/000276402236680
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